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Autism Stories
(Viewer Submitted
Stories)

VSS Table of contents: 

SUBMIT YOUR OWN!

What are Viewer Submittted Stories?

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Part of what makes any subject great is a variety of voices, ideas, and experiences. My voice alone might get kind of boring so I want to share your voice on this channel too! I am looking for story type formats so please make sure you include at least a couple of paragraphs. Try to make it fun, entertaining, or informational, but stay true to yourself. 

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When you submit your story please let me know if you would like to remain anonymous or if you're ok with me using your first name. No other information will be shared about you aside from me reading exactly what you wrote. 

What kind of stories are you looking for?

Basically, anything about your experience having ADHD, Autism, or both. You're welcome to reach out if you have a loved one on the spectrum too. If you're looking for some ideas though, here are just a few:

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  • Diagnosis horror stories

  • How you found out you were on the spectrum

  • Have you ever been told you were looking for attention or making it up?

  • Reactions to disclosing your diagnosis to people 

  • Masking

  • Some things you like about being on the spectrum

  • Working while autistic

  • Childhood Traits or stories from your childhood

  • Relationship stories - are you in a mixed neurotype relationship?

 

These are just a few for now... I will continually update this list to add to it. 

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Please note: If you submit a story please be patient. I'm autistic so getting to these takes some time. Also, Submitting a story doesn't guarantee it will get read especially if it is similar to past content but is eligible to be included on this website under the honorable mentions segment. Finally, I reserve the right to move this segment to a different channel, an exclusive medium, or behind a paywall at some point in the future. 

vss 3

VSS #3 - A differently wired brain?

Hi Jenn.

 

My name is Joanne.  I discovered I was autistic several years ago after the diagnosis of my son and had an official diagnosis of autism and ADHD this year.  

 

I remember always feeling out of place as a child like I didn’t belong.  On my first day of preschool I approached some girls playing, they had some elaborate pretend game going on, so I went up to them and just stood there, looking at them, expecting them to include me.  They didn’t and laughed at me and told me to go away.  I went away and got some crayons and drew pictures in the corner.  I was constantly in trouble for not being “nice”.  I couldn’t understand what this thing called nice was and apparently being honest and speaking the truth was the opposite of “nice”.

 

I would be very blunt with people and if someone offered me something I didn’t like I would just tell them with a straight face that “I don’t like that” and then I would be sent off to a corner for being “rude” or “mean”.  I was disliked by many of my teachers and other children's parents.  I was rarely invited to birthday parties.  I was even called a “fussy little sh*t” by another kids mother at a fair because I requested popcorn with no salt.  I actually feared going to other kids houses and having sleepovers because of my sensory issues around food and knew I’d be in trouble if I didn’t want to eat what they provided.  I didn’t like to eat anything with any kind of sauce.  I liked to eat very bland food.

 

I grew up as a fairly angry and reclusive child who rarely smiled and believed I was inherently a terrible person.  When I went into my teens I started to crave a fun social life and developed a very fake persona and tried to smile all the time and be as agreeable as possible because god forbid I wasn’t “nice”.  In high school I was bullied and kids wanted to fight me because they “didn’t like the way I looked at them”.  

 

I had quite a severe mental breakdown at the age of 18 after I’d moved out of home into a flat so I could be closer to the city and work.  I had my first boyfriend at the time and while he was initially attracted to me because he liked the way I looked, as he got to know me he got disinterested and ended up dumping me for a girl I hung out with.  I could see there was some kind of connection they had that I wasn’t capable of having with other humans.  The way some people seem to playfully bounce off each other in a social manner.  It was an impossible feat and I tried everything I could to be able to do it.  I was devastated about this debacle.  I felt like I was missing the necessary wiring in my brain that allowed people to connect with each other naturally.  I actually took myself to the local hospital.  I had a three week wait for an appointment with a psychologist.  When I went to see her I tried to explain that I felt like my brain was broken and I was different to other people.  I explained what had happened with the boyfriend and she kind of smiled and brushed me off saying it’s quite normal for young girls my age to experience this type of thing.  I left feeling so alone and hopeless and went into a deep depression because I couldn’t articulate my perceived malady.

 

In the subsequent years I researched a lot as much as I could about what might be different about me.  I booked a few other appointments with psychiatrists but never attended.  I suspected it may be bipolar but didn’t really resonate with the description of a manic episode.  I knew I often felt very inspired and energetic but would have extreme lows especially after social events.  I went on for years losing sleep before any kind of work function and having extreme anxiety afterwards.  I’ve actually walked out of jobs because I just couldn’t take it anymore.  I usually had jobs in retail or hospitality where I dealt with large crowds and busy environments.  I was good at getting the jobs because I was so good at masking but it never lasted.

 

Years later and I’m in a happy relationship with someone who doesn’t see me as defective or lacking, and appreciates my quirks.  I’ve managed to build myself a small business that allows me to work from home and avoid the things that cause me distress.  The anxiety that came with a typical work environment was actually a hugely motivating factor behind my success so in a way I’m grateful for it. 

 

A major revelation this year about my difficulties with forming friendships over the years.  I’ve always felt as if people hated me and I used to incessantly ruminate after every social interaction about how I behaved.  I tend to rant if I feel comfortable with someone, rant about my life and my interests, and I kind of just expected other people to do the same, if they wanted to talk to me then they would, regardless of whether or not I prompted them to tell me more.  I didn’t realise I was supposed to prompt people to continue talking about a thing.  So when someone started telling me something personal I’d look away and say something like “ok”…. Waiting for them to tell me more and they often never did and then never talked to me again.  I think the reason all my friends are very extroverted is because they don’t need that kind of reassurance to keep talking to me.

 

I have a small group of good friends but I still always feel like a bit of an outsider.  If I have a one on one conversation with any of them they will happily engage with me but when we are all in a group I notice that the other girls all know so much more about each other’s personal lives like it’s such a natural thing, doing the small talk and such.  Years ago this made me feel very insecure but now I just sit back and smile and it doesn’t bother me at all.  I’m different and we all appreciate each other in different ways.

 

Im glad I know this now, that your supposed to prompt people to continue a conversation.  But it feels awkward to me because if people do the same to me, try to steer me off my ideal line of dialogue, I get really uncomfortable and don’t like people pushing me for more personal information than I want to give.  So it’s still hard to determine if I’m being overly nosy or just having a “conversation”.

 

I find the interaction between autism and adhd very interesting.  I’ve always been a very fun seeking person and love novelty.  But I would always have a mild panic attack after all my interactions because I felt so awkward and would ruminate on it and it would consume so much of my energy.  

 

  I’m so glad I can begin to understand how my brain works now and enjoy all the things I want to do and stop wasting energy trying to be something I’ll never be.  It’s enabled me to be myself and except that yes maybe I do come across as a bit rude, or abrupt or disinterested to some people… and really that’s ok, it’s not the end of the world and it’s not high school anymore, so it’s unlikely that someone will want to beat me up because I stared at them for too long or didn’t look at them at all while they were talking.  There are a lot of people who like hearing an eccentric person rant about something they’re passionate about and don’t take offence to social ungracefulness. 

 

I’ve achieved a lot more in one year than I have in my whole life because I can focus my time and energy on what I can to better my life, and not stress over the unimportant things that I can’t change anyway, such as the fact that I’m a bit weird and awkward.  I didn’t make a public announcement about my diagnosis but I step select people and I’ve met a lot of other neurodiverse people as a result.

VSS #2 - When the mask breaks

VSS #2

Hi Jenn,

 

I am a 53 year old British autist. I can talk about many things but I want to talk about my lifetime experience of masking and how it led to the total collapse of my life.

 

I can distinctly remember my first decision to mask, although that's not how I would have labelled it at the time. It was the moment I realised that who I was, was not socially acceptable.

 

I started school at the age of 4 at a small, private school, where I was in a class of maybe 20 children. I had already learned to read before I started this school, and in this school, I remember being accepted for who I was at the time, and I was allowed to read my own books while the rest of the children read what I thought were 'baby books'. It was a lovely time in my life with some great early memories. Unfortunately, this was the mid 70s, and there was a major financial crisis, and my family could not afford to continue sending me there. I had to move to a state primary school ("public grade school" in the U.S., I think?). This was when the trouble started. I clearly remember a few incidents. In the first week, we had "class reading", when each child had to read a paragraph from a very basic book, in turn. I'd read the whole thing through before it came to my turn, so I got told off for not paying attention. That incident seemed to be the starting point of the conflict between me and that teacher. Everything I did was wrong. The other children thought I was stupid. I responded by play-acting as a way to try to survive this living hell. I would walk around the class making stupid noises and hand and head movements, including, of course, the famous arm flapping movement. The other children called me a "Spastic" (the 1970s British term for someone with cerebral palsy).

 

My mother was called in to the school to speak with the head-mistress about my disruptive behaviour.

 

That evening, my mother was both sad and furious. She said that because she was a widowed single mother, the social services might come and take me away and put me in a children's home, if I didn't stop acting up. I was so scared that I stopped. That was the start of my masking. I shut down and kept quiet at school. I endured primary and middle school in that state. I hated it so much. There was nowhere I could go to be myself around other people.

 

During that time I discovered the local library and I spent most of my spare time in there. When I was 11, I got interested in computers, and there was a man, a friend of my mother, whose retired father had been a signals engineer during WW2. He had what would now be called a man cave. He let me sit in there while he worked on various hobby projects with radio, computers and electronics. He let me just sit there while he smoked his pipe and soldered. I loved being there, and eventually I saved enough money to get my own computer when I was 12, which led to my eventual career as a computer programmer. I didn't have to mask in his man cave and I could ask as many questions as I liked and he didn't show any lack of tolerance for me.

 

During secondary school, I was fortunate enough to have teachers who encouraged my interests in maths, science, computers and history. I was very lucky. I was seen as a nerd of course, but I didn't experience the bullying I had at primary and middle school.

 

The problems really came when I went to university. The first two years were fine. I was studying maths and physics and everything was going well for me. I enjoyed being around other nerds and I loved the wider educational opportunities of university life. Then I met the girl who would become my first girlfriend, and everything fell apart for me.

 

For me, it was love at first sight. I quickly became infatuated. We became friends and we shared a sense of humour, but I knew I could not share my real, inner autistic core with her. I kept it covered up and only interacted with her through quirky humour, which she loved. I was very good at hiding everything I now know is autism. Unfortunately, the strain of not revealing my nerdy core to her led to what I now know is autistic burnout. I completely flunked my third year of my degree, partly because of the burnout, and partly because I was trying to reject my own self as a 'nerd'. I wanted to be a 'normal person' for her, which meant putting my interest in maths and physics into my past. I thought that personal growth for me was to become a 'people person' and reject what I had been, as something from my childhood and not relevant to my future with her as a normal adult. Without maths and physics, I had nothing, so I put myself forward to be ordained as an Anglican priest. I built a complete new persona around this idea, because I thought it would be something socially acceptable. Of course, because of my burnout, I ended up breaking up with her, but I continued with the trainee Anglican priest persona, all through theological college, which I excelled at, although the ordination never happened because fundamentally I wasn't suited to it and it was obvious to the Bishop (but not me) that I wasn't fundamentally suited to it.

 

I met and married a woman who was attracted to the mask, and of course that would end in complete disaster, but not before we had two children. She had her own mask too, a narcissistic one, so it was mutually disastrous. I won't say too much about in detail about this because I don't believe in washing dirty laundry in public, but basing my life on this persona led to everything completely falling apart around and inside me.

 

I eventually found my way back to maths and computing, and I was able to build up a consultancy business in that area. I quickly learned that I am not capable of working in an office ... because of the effort of pretending to be a 'professional person', so I developed a way of working that would be called 'hybrid' now, long before it became a trend.

 

The problem with being an autist is that where most people have strong social instincts, I have a gaping void. I have no social motivation whatsoever. For NTs, their entire lives are lived in their social context, but for me, social interaction is an unwelcome interruption of my constant stream of thoughts and research about what I suppose are my "special interests". But only a fellow autist can understand this: while I have no social motivation at all, I do have a need for normal human connection -- that is, to be meaningful to someone, and to find someone who is meaningful to me. I am very lucky to have found someone with whom I can co-exist in a fairly permanent state of "parallel play", which is all I want. I am now married to someone with whom I share a sense of humour and outlook on the world and with a similar "emotional temperature". She accepts my nerd-core although she doesn't understand it at all. (Nobody can of course!) She loves me for my traits, and not 'despite' them.

 

This is what I have learned: the vast majority of people seem to be fully motivated by social factors, although it seems to be much stronger in women than in men. Most of the women I know (except for my wife) seem to make decisions based on social factors that I can't even begin to guess at, let alone understand. I spent my teenage years completely baffled at the strange decisions my older female cousins made, and I found girls my age to be completely impossible to understand. I think that in men, it seems to manifest in social behaviour such as supporting football teams etc, or in rivalry to be the top dog/alpha male. I don't fully accept the alpha/beta male model, but the vast majority of men seem to be anxious to fit in, not rock the boat, keep their head down, pay the mortgage etc, whilst the wannabe alphas jockey for the positions at the top. I'm not interested in being either ... I just want to be free to do my own thing and follow my own interests.

 

The outcome is that since I have learned about the concept of masking, I have come to believe that it still an essential tool in a world where autists have to deal with allists (i.e. "allistic, non-autistic, NT" people). Either you mask, or you deal with the fallout from allists getting yanked out of their comfort zone, and to be honest, the ensuing drama can be more exhausting than the masking.

 

But that said, I will never, ever, again, attempt to build my entire life around a constructed persona based on what I think might be more socially acceptable.

 

I'll stop now ... this is turning rambly.

vss 1

VSS #1 - They were having something called "Conversations"

Hi Jennifer,

 

Thank-you so much for your video series.  It looks like you put a lot of effort in to them and it shows.

 

I'd really love for you to deliver loads of other people's stories as well, so I have one to share.  Sorry it's not funny, but hopefully relatable for some:

 

When I was about 12, I began to notice that the other children would have "conversations", which was a new idea to me at the time, but they must have been doing it for a while because I felt very suddenly left out.  I would rehearse in my head how to have conversations instead of going to sleep, and then practice during the day until my peers seemed to (as best I could tell) accept the behaviour.  Nowadays the program that I run for a conversation is basically asking the other person about their interests and showing interest in what they have to say.

I usually am genuinely interested because they have experience of something that I never have, so I try to "live" their experience vicariously by asking them to describe what it is like in an effort to relate.  People don't seem to mind the question carpet bombing even if they secretly think that it's odd.

 

This works for one-on-one conversations.  When there are three or more people then I don't know who should talk next.  I read somewhere that people can change their body posture or make a movement before interjecting, which seems to increase the chance that the other person will stop talking when interrupted.  I've also noticed that when two people are trying to talk at the same time, that I can choose who continues talking by making eye contact with the person who is trying to talk but who hasn't had as much air time.  I feel like they deserve to be listened to more because they speak less.  When there are more people, I cannot help but listen to all the conversations at the same time, which makes it difficult to focus on what a particular individual is saying.  I have learned to be quiet in such conversations, because it makes me seem more charismatic than when rubbish comes tumbling out of my mouth that doesn't make any sense in context, perhaps because I've made too much of a leap from the subject at hand.

 

I like to believe that I'd rather be around machines, but I really do need other people to be happy.

 

Thanks again

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